Connect with a mentor

Nucleus® 6 System & ReSound Hearing Aid, Bimodal | Usher’s Syndrome

As a visually challenged individual, I made the right decision to receive a Cochlear™ Implant.

A quick summary about David K.

• I’m a visually challenged individual.
• I no longer shy away from social engagements or meetings.
• I enjoy sharing my experience with others, giving back and encouraging them.

I’d been wearing bilateral hearing aids for many years and thought I was hearing well. My son noticed I was favoring my right ear and encouraged me to get tested. I made an appointment with an otologist to be evaluated. She told me I was a candidate for a cochlear implant and should consider having the procedure. I had several concerns but after discussing the situation with my family, I decided to go ahead. I had the procedure in 2016. My family and friends noticed that my hearing improved dramatically. I can now enjoy listening to music, TV, radio, and nature. I’m able to actively participate in everyday, business and social situations. I don’t regret for a second getting a Cochlear™ Implant, especially since I’m visually challenged.

My advice to those considering a cochlear implant or those that just received one is to keep in mind that better hearing doesn’t happen overnight. It takes work to “train the brain” to interpret the sounds it is receiving from the cochlear implant.

Nucleus® 7 System, Bilateral

I’m an Army Veteran in my late sixties. I enjoy walking, bike riding, hiking nature trails and helping others.

A quick summary about Stephen K.

• I noticed my hearing loss in my 40s and wore hearing aids until 2007.
• I received my first Cochlear™ Implant in 2007 in my right ear and my second implant in 2009 on the other ear.
• After I received my implants I started hearing sounds that I hadn’t heard in years. Each sound that came back was a WOW moment.

I’m Stephen, an Army veteran in my late sixties. I entered the Army in 1970 and worked with an artillery unit. Many of my assignments exposed me to varying degrees of noise. I noticed my hearing loss in my 40s. My wife started asking why I didn’t answer the doorbell for our apartment. It was because I did not hear it! We both knew that something was wrong. I had my hearing tested, and we found out I had a moderate to severe hearing loss in both ears. I was fitted with hearing aids. Years later, in 2007, I was struggling to communicate even with the best efforts of my audiologist. I became withdrawn and frustrated.

That year, I received a Cochlear™ Implant in my right ear and was activated with wonderful results. I started hearing sounds again that I had not heard in years. Each sound that came back was a WOW moment, I treasure each one. Still hearing those sounds is a wonderful feeling. A year and a half later, I received another Cochlear Implant on my other ear.

My biggest satisfaction as a mentor is providing information that helps answer questions for people considering Cochlear implants. One of the rewards of mentoring others is being able to expand my understanding and reinforcing my knowledge. I’ve supported many adults with hearing loss, many of whom are veterans and enrolled in the VA health care system. I enjoy helping others. If I can help you along your hearing journey, please feel free to contact me.

Top advice for mentees:

• Be patient when going through your hearing journey. Things take a while to sort out.
• Maintain good communication with your audiologist. He or she will be working with you for years and wants you to have the best possible outcome.

Baha® 5 SuperPower & Baha® 5 Power Systems – Connect, Bilateral

I enjoy traveling and being a Special Needs Daycare Teacher. The Baha® System brought me out of my shell.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Amanda D.

• I had hearing aids in both ears by the time I was 8 years old.
• I received my first Cochlear™ Baha® System in 2013.
• I’m able to hear the children that I work with as a Special Needs Daycare teacher.

I wore hearing aids from the time I was 8 years old until I was in college. When I got my first hearing aid, I remember sitting in the hospital waiting area and telling my mom that I can hear the phone ringing and the elevator, it seemed like it was too much, and I wanted it out of my ear. Eventually I got used to my hearing aid and got a second one on my other ear. I was in college when my left ear stopped benefiting from hearing aids. I received my first Baha® in 2013 and my second in 2017 on the other ear.

Life with my Baha 5 SuperPower Sound Processors is wonderful. I love traveling to see my friends. I love going to the Cochlear Celebration to meet up and visit with my Cochlear family. My Baha System helps me carry out my duties as a Special Needs Daycare Teacher, because I’m able to hear the children that I work with and, more often than not, I can hear them the first time without having them repeat themselves. The Baha System brought me out of my shell.

I love mentoring people that need more information about the Baha System. My advice to them is, “don’t wait to get it!”

Kanso® 2 System, Bilateral

I’ve had Cochlear™ implants for thirty years, ten years bilateral. I love going to concerts and listening to music.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Margo K.

• My hearing challenges began when I was two years old after a car accident.
• I received my first Cochlear™ implant in 1989 and have enjoyed seven sound processor upgrades since then!
• When I began to hear again, my twelve-year-old son told me, ““Now I can tell you anything Mom”.

I’m Margo. My hearing challenges began when I was two years old after a car accident. I’d lost all hearing in my left ear and part of my hearing in my right ear. When I was 21 I received my first hearing aid for my right ear. At 25 a virus took what remained of my hearing. I was married with a one-year old son and suddenly my world became silent. It was traumatic. My biggest concern was whether I would be able to be a good mom to our son and wife to my husband.  Our family adapted and grew. Some of my biggest challenges were constant fatigue due to the effort it took to communicate. In 1989, I received my first Cochlear™ implant (CI).  My children were 5, 7, 9, and 12, and they became my teachers helping me learn to identify sounds. As I began to understand what was being said, my family and friends were very happy. I no longer struggled to communicate.  I remember my 12-year-old son telling me “Now I can tell you anything Mom”.

In 2008, I received a Cochlear implant in my other ear, which had lived in silence for 54 years. My world of sound became richer and more vibrant compared to having only one CI ear. I was thrilled as it meant the new CI ear had the potential to learn to hear. The hearing journey took a bit longer for my second ear and required more effort and perseverance but, it was well worth the effort.

The biggest pieces of advice I like to give people with hearing loss in those early months after getting their CIs are the P words. Patience, practice, perseverance and a positive attitude are key in getting the most out of your Cochlear implants.

Nucleus® 7 Hybrid™ Implant System* & ReSound Hearing Aid- Bimodal

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

I enjoy sharing my experience with others in support of their hearing journeys.

A quick summary about Susan H.

• My hearing loss began after a severe viral infection.
• I struggled to hear women’s and children’s voices and later men’s voices as well.
• Now, I can hear my daughter clearly, freely talk on the phone, and pursue work projects again.

My hearing journey began after I experienced a severe viral infection. I remember not being able to hear the phone ring and realizing something was wrong.  Shortly after, I got hearing aids and went on with my life. I didn’t realize my hearing loss would be progressive, dropping unpredictably through the next years until hearing aids were no longer effective. I struggled with my career and hearing my daughter, as well as most women’s and children’s voices. Men’s voices came next and I couldn’t function professionally. I was losing my career and my relationships were suffering, I was devastated. I learned about the Hybrid™ implant system through a friend, went in for an assessment and sometime later I scheduled the procedure. My sister shed tears of joy at my activation, and my family was thrilled. Although it took time, I could communicate with them again, and life got a lot more pleasant for all of us! I felt like I’d been given my life back.

I found a mentor early on in my hearing journey. She was tremendously helpful, and we remain friends today. I mentor others because this is a difficult journey and I don’t want anyone to go through it alone.  My advice to others considering this type of hearing solution: Reach out, don’t try to go it alone. The fears and concerns you’re having are likely the same as we all had!

* The Acoustic Component should only be used when behavioral audiometric thresholds can be obtained and the recipient can provide feedback regarding sound quality. The Hybrid L24 Implant is approved in the US for adults ages 18 and older for unilateral use only.

Nucleus® 7 System – Bilateral

I’m an Air Force veteran. I enjoy music, yoga and talking to friends and family on the phone.

A quick summary about Denise B.

• My hearing progressively declined on my right side until I had little hearing left.
• In 2008, I lost the hearing on my left side overnight becoming profoundly deaf.
• I received my first Cochlear™ implant in 2009 and my second one in 2017 on my other side.

My hearing journey began with single sided deafness in my early thirties. I began using a hearing aid in 1992. My hearing progressively declined on the right side until I had little hearing left. In 2008, I lost the hearing on my left side overnight becoming profoundly deaf. This total hearing loss was sudden and catastrophic for me.  I couldn’t communicate, use the phone, understand music, practice yoga, all things that made life enjoyable, and I was struggling to keep my job as a college professor. When I learned about cochlear implants, I took everything about them on faith. There were no mentors available to talk with and most of the information came from the audiologist, who was wonderful. I received my first Cochlear™ implant in 2009, and my second one in 2017 on my other side. It was wonderful to hear sounds again. Speech took a bit longer, but it was a miracle to hear again.

As a volunteer mentor I help people learning about cochlear implants by sharing my experience, explaining what to expect, and sharing the challenges and strategies that I used to overcome the learning curve.

My piece of advice to new recipients is to practice, practice, practice. It gets better over time and every time you use the sound processor your brain is working. When you start to get tired, take a break 15-30 minutes then go back to the sound processor. Audio books are a good way to practice speech recognition and use the online tools, connect with a mentor and ask questions.

Nucleus® 7 Systems – Bilateral

I’m retired and I love that I can hear my grandchildren and that it’s easy to converse with family and friends.

A quick summary about Marty G.

• I was in my mid thirties when I learned I had a mild hearing loss in both ears.
• In 2011, I lost all hearing in my right ear.
• I enjoy walking on trails and attending Classic Fit classes.

I was in my mid thirties when I learned I had a mild hearing loss in both ears. It was recommended that I wear hearing aids. With time, my hearing loss progressed in both ears. Then, in 2011, I lost all hearing in my right ear suddenly as I was preparing to return to work as a high school librarian. It was vital that I be able to communicate and understand fellow teachers, students, and, of course, my family. I saw more than one ENT as I researched solutions for my hearing loss. A cochlear implant was recommended by one of the ENTs. I received my first Cochlear™ implant in 2012 and the second one more recently. When my sound processor was activated, I could hear at that very first appointment with my audiologist but was somewhat overwhelmed when I went home and heard lots of good sounds but also very loud annoying sounds. I knew from that first day, that I would focus on hearing again and I became my own cheerleader. Within 3 months I was hearing so much better that my book club friends and family commented on it.

My top tips for new recipients are to keep a journal right after activation, noting new enjoyable sounds but also recording any issues or questions you might have. Prioritize your questions or concerns before your next appointment with your audiologist. I emphasize the 3 P’s, Patience, Practice, and Persistence as good strategies to make the most out of your hearing.