Connect with a mentor

Parent – Nucleus® 7 System*, Bilateral | Sensorineural hearing loss

My daughter, MaKayla, enjoys extracurricular activities and sports. She’s in mainstream classes.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Angel V.

• My daughter began wearing hearing aids at two months old.
• By age 4 she had lost all her hearing.
• It’s important to keep up the work to better hearing. It’s all worth it in the end!

My daughter, Makayla, was diagnosed with hearing loss through a routine screening. I was upset, scared, and worried. My biggest concern was that my daughter would never hear me say “I love you”. I didn’t know any other individuals living with hearing implants. Her hearing continued to decline over the course of four years, and she was implanted just before her fifth birthday. After her sound processor was activated, she began to respond to sounds and voices and my family and I were excited. Each day when she heard a new sound she would ask us to identify what she was hearing.  I became increasingly comforted by these experiences.

As a mentor it is so rewarding to give back to others at a time when they need reassurance most.

A piece of advice I have for people that are beginning their hearing journeys is to remember that they are not alone.

* The Cochlear implant system is intended for use in children 12 to 24 months of age who have bilateral profound sensorineural deafness and demonstrate limited benefit from appropriate binaural hearing aids.

Parent – Baha® 5 Attract, Unilateral | Single-sided cholesteatoma

My son, Alex, plays in his school’s performing arts music program.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Chrissy F.

• My son plays bassoon, trombone and baritone in his school’s music program.
• He’s enrolled in advanced classes and thriving!
• He’s passionate about pursuing a future in music.

My name is Chrissy, and my son, Alex, wears a Baha® 5 Attract System. When he was two, we learned that he had a unilateral cholesteatoma that caused severe damage to his hearing. When he was 9 years old, he tried a Baha demo in the Audiologist’s office and wanted it immediately. We moved forward with the Baha System shortly after that, and he has done very well with it. Today, Alex is enrolled in all advanced classes and active in his school marching band. He is passionate about a future in music and hopes to join a college with a music program. He is a strong, proud kid that embraces his situation and makes the very best of it. My advice to parents with children with hearing loss is to keep a positive attitude and teach your child to know that they are special and unique. If you do these things, they will thrive. Alex and I are both here to help with questions on your family’s hearing journey.

Nucleus® 7 Hybrid™ Implant System* & ReSound Hearing Aid- Bimodal

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

I enjoy sharing my experience with others in support of their hearing journeys.

A quick summary about Susan H.

• My hearing loss began after a severe viral infection.
• I struggled to hear women’s and children’s voices and later men’s voices as well.
• Now, I can hear my daughter clearly, freely talk on the phone, and pursue work projects again.

My hearing journey began after I experienced a severe viral infection. I remember not being able to hear the phone ring and realizing something was wrong.  Shortly after, I got hearing aids and went on with my life. I didn’t realize my hearing loss would be progressive, dropping unpredictably through the next years until hearing aids were no longer effective. I struggled with my career and hearing my daughter, as well as most women’s and children’s voices. Men’s voices came next and I couldn’t function professionally. I was losing my career and my relationships were suffering, I was devastated. I learned about the Hybrid™ implant system through a friend, went in for an assessment and sometime later I scheduled the procedure. My sister shed tears of joy at my activation, and my family was thrilled. Although it took time, I could communicate with them again, and life got a lot more pleasant for all of us! I felt like I’d been given my life back.

I found a mentor early on in my hearing journey. She was tremendously helpful, and we remain friends today. I mentor others because this is a difficult journey and I don’t want anyone to go through it alone.  My advice to others considering this type of hearing solution: Reach out, don’t try to go it alone. The fears and concerns you’re having are likely the same as we all had!

* The Acoustic Component should only be used when behavioral audiometric thresholds can be obtained and the recipient can provide feedback regarding sound quality. The Hybrid L24 Implant is approved in the US for adults ages 18 and older for unilateral use only.

Kanso® 2 System, Bilateral

I’ve had Cochlear™ implants for thirty years, ten years bilateral. I love going to concerts and listening to music.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Margo K.

• My hearing challenges began when I was two years old after a car accident.
• I received my first Cochlear™ implant in 1989 and have enjoyed seven sound processor upgrades since then!
• When I began to hear again, my twelve-year-old son told me, ““Now I can tell you anything Mom”.

I’m Margo. My hearing challenges began when I was two years old after a car accident. I’d lost all hearing in my left ear and part of my hearing in my right ear. When I was 21 I received my first hearing aid for my right ear. At 25 a virus took what remained of my hearing. I was married with a one-year old son and suddenly my world became silent. It was traumatic. My biggest concern was whether I would be able to be a good mom to our son and wife to my husband.  Our family adapted and grew. Some of my biggest challenges were constant fatigue due to the effort it took to communicate. In 1989, I received my first Cochlear™ implant (CI).  My children were 5, 7, 9, and 12, and they became my teachers helping me learn to identify sounds. As I began to understand what was being said, my family and friends were very happy. I no longer struggled to communicate.  I remember my 12-year-old son telling me “Now I can tell you anything Mom”.

In 2008, I received a Cochlear implant in my other ear, which had lived in silence for 54 years. My world of sound became richer and more vibrant compared to having only one CI ear. I was thrilled as it meant the new CI ear had the potential to learn to hear. The hearing journey took a bit longer for my second ear and required more effort and perseverance but, it was well worth the effort.

The biggest pieces of advice I like to give people with hearing loss in those early months after getting their CIs are the P words. Patience, practice, perseverance and a positive attitude are key in getting the most out of your Cochlear implants.

Nucleus® 7 System – Bilateral

For me every day is a hearing adventure!

A quick summary about Sue M.

• I began losing my hearing as a result of a childhood illness.
• I was in hearing aids by the time I was in my 40’s and wore them for over 20 years.
• I received my first Cochlear™ implant in 2012, my second came a year later.

My hearing loss is a direct result of a childhood illness. I gradually lost more of my hearing resulting in bilateral hearing aids by the time I was in my 40’s. I wore hearing aids for over 20 years. As my hearing loss progressed, hearing and understanding speech became harder. My husband and I were square dancers but, it became extremely difficult to understand the callers and I wasn’t able to enjoy this activity any longer.  I avoided social activities.  When I learned about Cochlear in 2012, I was struggling and getting worse. I received my first Cochlear™ implant in 2012, my second one came a year later. Soon after that, I discovered that the world was a very noisy place. Hearing in stereo is wonderful! My activation day was truly a miracle. I was amazed at what I could hear – things I hadn’t heard in years. My husband says that my Cochlear implants are a miracle because he can now talk to me without having to yell. My confidence in dealing with daily life and social situations has returned. Being able to hear has improved my relationships with my husband and friends. My work requires dealing with the public and I now do it with confidence.

I love being a volunteer mentor and helping others on their hearing journey. My advice to new recipients is to use the three P’s:

• Patience – be kind to yourself, this is a journey not a sprint.
• Persevere – don’t be discouraged.
• Practice – the more you do, the happier you will be.

Nucleus® 7 & 6 Systems – Bilateral | Autoimmune Inner Ear Disease

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

I enjoy spending time with the grandchildren, volunteering, and listening to the sounds of nature.

A quick summary about Lori O.

• I lost my hearing overnight.
• I received my first Cochlear™ implant in 2012 and my second in 2014 on the other ear.
• Practice the 4 P’s – practice, patience, perseverance and positive attitude.

One day in 1985 I woke up deaf. My family and I were stunned at the sudden loss. I was able to regain some of the hearing in my right ear and was fitted with a hearing aid. Fast forward to 1991 and I once again woke up deaf. After many tests I was diagnosed with Autoimmune Inner Ear Disease (AIED). I struggled for 27 years to keep what hearing I had by using medications and several experimental treatments. Over the years we managed to get past the many “down times” I had. In 2012 I realized the battle to keep my natural hearing was not to be won. I received my first Cochlear™ implant shortly after that. After activation, my husband and I had a blast on the 2-hour drive home. It was the first time in years that I heard and understood music. I understood him while in the car, heard the passing cars and the blinker! My silenced social life blossomed. My two sons and their families smiled from ear to ear as I heard everything they were saying. The little ones…oh how blessed I was to be able to understand them!

Being a volunteer mentor has brought so much joy to my life. Seeing how happy someone I mentored has become after his/her hearing is restored is very exciting. The most important piece of advice I can give to someone (and their family) considering a Cochlear implant is to understand that there’s a learning curve after receiving your Cochlear implant. For some, speech comprehension isn’t instant. It can take time for the brain to connect the dots to hearing and involving family and friends is helpful.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Iraida F.  

• I was a child when I was diagnosed with hearing loss.  

• I wore hearing aids from elementary school through college.   
• I’m bilingual and speak English and Spanish.   

I was diagnosed with mild hearing loss and fitted with hearing aids as a child. I wore hearing aids from elementary school through college. While attending college, my hearing got worse, and hearing aids no longer helped. I moved from Puerto Rico to the U.S. The language change combined with my hearing loss made understanding English almost impossible. My audiologist recommended cochlear implants. Researching all I could, I found information about a hearing health seminar. Going to this event gave me a wealth of information that helped me take the next steps.  

On activation day, I heard a lot of static, and family and friends all sounded as if they were chipmunks – squeaky and chirpy, but I could understand them! After that, the follow up sessions became very important. I noticed very quick and steady improvement, especially when having conversations with family. They no longer had to repeat themselves and began to sound normal, even the static sounds faded away. It felt effortless to listen to them.  

Nowadays, I’m able to attend virtual meetings without scheduling closed-captioning services. I can focus on my colleagues’ faces to see how they are feeling about what’s being discussed.      

My top tips for those considering an implantable hearing solution are to understand that feeling nervous about the surgical procedure is human and is okay, ask friends and family for support when you need it and take time to recover.   

Nucleus® 7, Bilateral | Sensorineural Hearing Loss

I’m a college graduate with a love of music, fitness and helping others.

I’m also available to connect on Cochlear Americas – Connect with a Mentor Facebook group: https://www.facebook.com/groups/CochlearConnectwithaMentor

A quick summary about Olivia W.

• When I was 4 ½ years old I completely lost my hearing.
• I graduated with a Master’s degree.
• I enjoy listening to music, working out and sharing my knowledge with others.

Hi! I’m Olivia and I received a Cochlear™ implant when I was 5 years old. I was diagnosed with hearing loss at 3 ½ years old and initially I wore hearing aids for a short time. When I lost my hearing completely, I remember sitting in the back of the car as my father drove us back from hearing therapy. Suddenly, it sounded as if someone was turning down the volume on my hearing aids. I thought that my batteries needed to be changed, but that was not the case. After that, my parents took me in to be tested and was diagnosed with profound hearing loss. I received a Cochlear Implant at this time. I started kindergarten shortly after having my sound processor activated. I progressed well with my Cochlear implant. Later on I decided to move forward with getting a Cochlear implant on my other ear and I was able to do even better.

One of my most vivid memories of my family reacting to me first hearing with my Cochlear implant is when the phone rang, and I reacted and questioned if that was the phone. They were shocked and excited, realizing that the Cochlear implant was working for me.

Mentoring is important to me because I’m able to let others know they aren’t alone on this journey. There are so many people that have gone through this. We are a community and we stick together. A piece of advice I would give to families looking into Cochlear implants for their children is that supporting your child 100% is so important. Between scheduling the procedure to emotional support afterwards and encouragement and patience as your child learns to listen and speak and even excel!